My Blog

Our Story

Sydney Emma was born on December 23, 2005.  It was a typical day for a family who was just about...

What Is SMS?

I think this is best answered with a combination of scientific fact and perspective.  I present the perspective of a...

Happy Holidays!

On the eve of what will be a race to the holiday season I have a few thoughts…   First… Read More

What My Sister Has Taught Me About Myself (written by, Ben Iannuzzi…guest blogger)

A couple of weeks ago, I had a few friend’s sleepover, when my sister barreled down the stairs yelling the… Read More

Limp Mode

Sometimes simplest things make you think about their deeper meaning. A few weeks ago, I was out running errands with… Read More

Time Stops for No Mom

One of the hardest things about being a parent is reconciling your relationship with time.  When you have both typical… Read More

Welcome! Let’s Weather This Storm Together

On Wednesday September 5th 2007 at 11:30am (to be specific) I learned that my daughter had a rare genetic syndrome… Read More